What is World Sickle Cell Day?
On December 22, 2008, the United Nations General Assembly adopted a resolution that recognized sickle cell disease as a public health problem. The UN designated June 19 of every year as World Sickle Cell Awareness Day in order to raise awareness about the disorder on the national and international level.
Why is World Sickle Cell Day Held?
Since 2008, the day has been marked annually to help increase public knowledge and raise awareness about the disease and the struggles that patients and their families go through around the world. The day also highlights the treatments, whether therapeutic or curative, that is available for individuals suffering from sickle cell disease.
June 19th was officially designated as World Sickle Cell Awareness Day. The international awareness day is observed annually with the goal to increase public knowledge and an understanding of sickle cell disease, and the challenges experienced by patients and their families and caregivers.
Activities and Links...
SiNERGe, in collaboration with Sickle Cell Disease Association of America, Inc. (SCDAA), is launching a 24-hour awareness campaign this year, called “Shine the Light on Sickle Cell.” This national awareness effort encourages community-based organizations, individuals, and anyone concerned about sickle cell disease.
We invite you to join with friends, family, neighbors and others in your community, as people around the nation and across the globe, host and hold local gatherings to shine the light on sickle cell disease. Together, we must and will find a universal cure for sickle cell disease!
For updates, please follow the "Shine the Light" campaign on Facebook.
Here are a few resources for you:
Join Sickle Cell Foundation of MN and others as we celebrate World Sickle Cell Awareness Day via FACEBOOK LIVE on Fri June 19th, 1 - 1:30 PM (CST), to support our sickle cell community through prayer and music.
Joining us will be:
Dr. Dora Clayton, Marquette University
Ed Jenkins, Excelsior Covenant Church
Pastors Ervin & Melva Henderson, World Outreach Center
Rae Blaylark, Sickle Cell Foundation of MN
India Amaree, Psalmist, Unity Gospel House of Prayer