Resources During the COVID Health Pandemic

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

At Sickle Cell Foundation of MN (SickleCellMN) it is our desire to support the entire Minnesota sickle cell patient and caregiver community, we are limited in our funding and are continually exploring access to additional grants, donations, and partners to assist in this work. Sickle cell patients and caregivers are encouraged to FIRST utilize/reach out/exhaust all federal and state resources. SickleCellMN continues to identify resource gaps and will fill community needs as we are able.

Thank you for you on-going patience and support. 

**As a non-profit organization, we rely on the generosity of our sponsors.

Program continuation is contingent on the availability of funds** 

Donate to the COVID Community Assistance Grant

Financial Resources:

Minnesota Residents: Are you or your family having financial challenges due to the COVID-19 pandemic? 

Sickle Cell Foundation of MN, Global Blood Therapueutics (GBT) and Raise Hope, LLC is offering FINANCIAL ASSISTANCE grants* to Minnesota families in need during the COVID-19 health pandemic. 

 

APPLY NOW TO RECEIVE UP TO $250 IN ASSISTANCE!

 

 

(ink is disabled when no funds are available)

**Please allow 24-48 hours to receive a reply**

**SickleCellMN programs and resources may be modified or discontinued at any time if funding is limited and/or no longer available.**

 

Qualifications:

  • You are an individual or caregiver of someone with a confirmed diagnosis of Sickle Cell Disease

How to Apply:- NOTEFUNDING IS NOT CURRENTLY AVAILABLE, WE HOPE TO SECURE MORE FUNDING SOON!

  • Click the link above or email us at: info@sicklecellmn.org

  • Complete the financial assistance form (link is disabled when no funds are available)

  • Someone will contact you to complete the process 

Please be prepared to discuss:

  • Proof of medical diagnosis

  • Household size

  • Household income (or loss of income)

Other Financial Resources:

#StaySafeMN:

Click here to learn more about Governor Walz's Executive Order 20-33, directing Minnesotans to limit movements outside of their homes to help slow the spread of COVID-19 and what that means for you and your household. 

Are you an essential worker?

Essential workers are the backbone of this pandemic. Some are essential workers by choice, while others have very few options and MUST continue to work. We know that working from home is a luxury for some. If you must leave your home, please follow these simple steps to keep you and your loved ones safe during this health crisis.

 

 

 

 

 

 

 

 

 

 

 

Other COVID-Related Resources & Info:

Face Masks

Recent studies show that a significant portion of individuals with COVID-19 lack symptoms (“asymptomatic”) and that even those who eventually develop symptoms (“pre-symptomatic”) can transmit the virus to others before showing symptoms. In light of new evidence, CDC recommends wearing cloth face coverings to slow spread of COVID-19 in public settings where other social distancing measures are difficult to maintain (e.g., grocery stores and pharmacies) esp. in areas of significant community-based transmission. Learn more from the CDC Website.

Cloth face coverings fashioned from household items or made at home from common materials at low cost can be used as an additional, voluntary public health measure to help slow the spread of COVID-19.

SickleCellMN has a limited number of child-sized cloth masks.

Please contact us at info@sicklecellmn.org to have one mailed to you.    

 

 

*Supplies are limited*

 

 

Emergency Food Support

We know that families are facing many difficulties, including food security. Good nutrition, including anti-inflammatory food choices, are a critical part of living well with sickle cell. If you or someone in your household is living with sickle cell disease and in need of food during this pandemic, we can help! Email us at info@sicklecellmn.org 

Supplemental Food Nutrition Program (SNAP)

In addition, if your monthly income has decreased, you may now be eligible for assistance through the Minnesota SNAP Program (eligibility based on income and family size). Learn more about COVID-19 emergency food support here.

 

Housing

Governor Walz announced  Executive Order 20-14 Suspending Evictions and Writs of Recovery During the COVID-19 Peacetime Emergency on March 23, 2020. The suspension went into effect at 5:00 p.m. on March 24, 2020 and is scheduled to end on Sun May 17, 2020. Click here for a centralized location for all Minnesota Housing updates and information related to COVID-19

Health Care - Medication Assistance

If you are having difficulty paying for your prescription medications, the PAN Foundation is a new patient assistance program for people living with sickle cell disease. 

 

If you have been denied coverage for prescription therapeutic meds or do not have health insurance and cannot afford to pay for your therapeutic meds, such as Hydroxyurea, Oxbryta, etc., SickleCellMN may be able to help. Email us at info@sicklecellmn.org.

If you do not have healthcare coverage, the state of Minnesota has programs to help people with little to no income obtain healthcare. Other state healthcare programs also help people who work but do not have access to affordable health insurance. To learn more click here.

Education

Click here to track school-related updates on the COVID-19 response. You can also sign up to receive email notifications when the page is updated.

 

Are you a essential or critical worker?

Find a list of School-age Care for Children of Critical Workers - (State List - 4/9/20)

Mental Health and Wellness 

At Sickle Cell Foundation of MN we believe that true wellness encompasses a mind, body and spirit approach. We believe in the power of prayer AND the power of medicine. We believe that healthy minds give way to a healthier body and an overall improved quality  of life. It is important that you stay physically, mentally and emotionally well, especially during times of increased anxieties.

 

If you or someone you love is experiencing a mental health crisis, help is available! Crisis services are available 24/7. For more information click here.

In addition to seeking community services, there are many resources and suggestions that can be found online.  Here are a few ideas courtesy of SickCells and Sickle Cell 101:

  • The Sickle Cell Podcast is an informative podcast with a variety of topics talking about all things sickle cell related, sharing warrior experiences and providing sickle cell related education. 

 

  • Use ZoomGoogle Hangouts, or Skype to video chat with friends (while sharing your screen). Below we share some suggestions:

  • Play Scattergories. Grab a paper and pen and join the virtual hangout. One person shares their screen with the online Scattergories board. Then, the game begins! Everyone has 2 minutes to come up with unique words and earn points.

  • Create an Indoor Scavenger Hunt for Kids. Create an Indoor Scavenger Hunt list and watch as kids run around the house to find each of the items. Race your neighbors, cousins, or friends to find them all.

  • Learn some new dance movesStep by Step dance school streams nightly virtual dance classes, so you can learn to salsa while laughing with friends.

  • Take a Group Cooking Class. Try googling "Free online cooking class" and take a peek at all of the free fun stuff being offered as online. Have fun cooking!

Economic Stimulus Impact Payment - Form for Non-Filers

Who should use Non-Filers?

 

Eligible U.S. citizens or permanent residents who:

  • Had gross income that did not exceed $12,200 ($24,400 for married couples) for 2019

  • Were not otherwise required to file a federal income tax return for 2019, and didn't plan to

 

You can provide the necessary information to the IRS easily and quickly for no fee through Non-Filers: Enter Payment Info. We will use this information to determine your eligibility and payment amount and send you an Economic Impact Payment. After providing this information you won’t need to take any additional action.

 

For additional information or to complete the form visit the IRS website at irs.gov or click the link(s) below:

Additional Links and Resources:

 

Coronavirus Education:

Coronavirus disease 2019 (COVID-19) is a respiratory illness that can spread from person to person. Minnesotans should take action to protect themselves and others from infection. Here you will find links and resources to the latest information on COVID-19 for the CDC & State of Minnesota.

Cornonavirus in Minnesota

Local information on COVID-19 in Minnesota

Minnesota Department of Health (MDH) 

MDH serves to protect, maintain, and improve the health of all Minnesotans. Within MDH there are many departments and divisions. Learn more about MDH here 

#StayHomeMN

Learn more about Governor Walz's Executive Order 20-33, directing Minnesotans to limit movements outside of their homes to help slow the spread of COVID-19 and what that means for you and your household.

Center for Disease Control (CDC)

CDC is one of the major operating components of the Federal Government's Department of Health and Human Services (HHS). Their mission is to protect America from health, safety and security threats, both foreign and in the U.S. Click here to learn more about the National response to this pandemic.

World Health Organization (WHO)

Working with 194 Member States, across six regions, and from more than 150 offices, WHO staff are united in a shared commitment to achieve better health for everyone, everywhere. Click here to learn more.

American Society of Hematology (ASH)

The novel (new) coronavirus is having an impact on medicine and hematology around the globe. To help keep you informed, ASH has created a collection of resources for hematologists. Click here to learn more.

Sickle Cell Disease Association of America (SCDAA)

SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure. The SCDAA Medical and Research Advisory Committee has provided basic information on COVID-19 and shared important information for warriors, caregivers and medical providers.

About us

Sickle Cell Foundation of Minnesota (SCFMN) was founded in 2015. We are a community-based organization comprising of passionate patients, caregivers, sickle cell trait carriers, healthcare providers, advocates, and other individuals and stakeholders who are concerned with the outcomes of our community.

Our Mission: To improve the quality of life for individuals and communities affected by sickle cell disease and sickle cell trait. Our goal is to provide community programs and resources that meet the needs of individuals and medical providers.

Our Vision & Values: By connecting individuals and families living with sickle cell to one another, to competent and compassionate medical providers and services that provide increased access to resources that address barriers to care, we believe we can and will help to improve health outcomes that also improve and enhance quality of life. Our commitment to the sickle cell community is deeply rooted in our belief that we are stronger together than as one. We value our individual and community health, equitable access to competent and compassionate care and community-centered solutions. The foundational pillars of our work create the building blocks necessary to increase health literacy, build support networks, and empower individuals to live at their full capacity.

**As a non-profit organization, we rely on the generosity of our sponsors.

Program continuation is contingent on the availability of funds** 

Donate to the COVID Community Assistance Grant

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